Thursday, August 7, 2008

Well, today was another long day. Chance had a peaceful night last night.

For most of the morning, he slept. Around 3:00, he woke up and mouthed 'I want my mama'. How exciting is that? He spent quite awhile awake and agitated. This happened twice today.

He still has the ventilator hooked up and still has his head taped down. They are trying to keep him sedated so he doesn't get so agitated but the medicine just isn't working for him. They tried a new mixture on him tonight. We hope it works and that his night goes better than his evening has went. One time he was trying to sit up and I was telling him to lay back down and relax, that he had to get his rest and you know what that boy did to me? HE STUCK HIS TOUNGUE OUT AT ME!!!!!

The things that he has tried to say are (and anyone that knows him will really appreciate these) 'I want to talk', 'I want to play football', 'I want to play xbox', I want to get up', and 'I want to go home'. He told us that his head hurt a few times and they gave him so medicine for that.

All of the doctors are very pleased with the way that things are going. The things that he is trying to say are appropriate for his age. It isn't garbled up. He can't wait to come home and see all of his friends and have a sleepover with Noah and Adam.

The plan for tomorrow evening is to try and take the tape off and the ventilator out. As long as his head is taped, he has to stay sedated and as long as he is sedated, he has to have the ventilator. With the way things are moving along, we think he will be tapefree and ventilator free by the time bed time rolls around tomorrow.

We have some pictures that I am still thinking about on whether or not we should share them. They have mostly been taken for him to see someday down the road to show him where he started his 'new life'.

I don't remember if I told anyone or not already, but right before surgery, they asked us to donate Chance's brain tissue to be studied and of course we agreed. Anything that we can do to help doctors understand what happened when Chance was forming, we will do so that maybe someday, they can fix it or stop it from happening. Who knows, maybe some more good will come out of this.

Thanks for all of the support and we'll talk tomorrow.

10:44 PM

”The