Sunday, August 10, 2008
Well today has been one of many changes.
Chance pulled his IV line out of his left arm (not sure how he did that,both his hands were tied to the bed and the right hand doesn't work anyhow). He reminds us all so much of my father. My dad ripped out his IVs most times and even snorted out his feeding tube. These not so good traits are coming out in Chance as well.
This morning, he told me that he loved me and asked for a hug.
They decided that he was being moved to the floor sometime today too. So, to get ready for that, we removed his catheter, the central line in his neck, the drain in his head, the bandage on his head, the tube that was in his nose and the face mask of oxygen. In their places, we put in a feeding tube and the oxygen tube that has the two little prongs that go up your nose. They actually let you help here. Not the serious or scary stuff, but the minor stuff they do. He has a PCS system which is basically something that continuously gives him pain medicine and then also has a button that if he hurts, we can push it for some more. It is set so that he doesn't get too much.
He was moved to his new room at about 1:15. The rooms here are cool. I can't wait until he wakes up enough to enjoy this place. In his room, there are a few chairs, a bed, a chair that folds to a bed, a tv, a game system, dvd/vcr player, a bathroom with a shower and his 'area'. And that is just his room. They also have a laundry room, a playroom for the kids and a pantry that has lots of different snacks when he can eat again. It's just like a hotel for kids.
He has spent most of the day semi sleeping and crying/moaning that he wants to go home, his head hurts, he wants to go home, he wants chocolate milk, he wants to go home, he wants to sit up, he wants to go home (are you noticing a pattern here??).
He got to talk to his daddy twice today, well he mostly listened to him. Bryan had the most amazing calming effect on Chance. He loves his daddy.
He also got to talk to Quinton, Dilan, Tracy and Gam.
Just a little while ago, he told us that his hand hurt. Dee got the nurse and when she looked at his hand, it was swollen WAY BIG. She took the IV out and we're waiting for the IV therapy people to come and put a new one in. She gave him a warm pack to put on to help with the swelling but he doesn't like it.
I want to say a special thank you to my mother and daughter. My mom has been here to help with Chance and support is in any way that we need. My daughter set up this wonderful web site (or had it set up) and helps me because I am so web incompetent. She is helping with Chance yesterday and today and has been a huge help. Chance was pretty mean to her this morning but he didn't really know any better.
I know that each day is going to get better as we go along. The difference between yesterday and today is amazing.
I can't wait to see what tomorrow brings.
Here are a couple more pictures.
Chance pulled his IV line out of his left arm (not sure how he did that,both his hands were tied to the bed and the right hand doesn't work anyhow). He reminds us all so much of my father. My dad ripped out his IVs most times and even snorted out his feeding tube. These not so good traits are coming out in Chance as well.
This morning, he told me that he loved me and asked for a hug.
They decided that he was being moved to the floor sometime today too. So, to get ready for that, we removed his catheter, the central line in his neck, the drain in his head, the bandage on his head, the tube that was in his nose and the face mask of oxygen. In their places, we put in a feeding tube and the oxygen tube that has the two little prongs that go up your nose. They actually let you help here. Not the serious or scary stuff, but the minor stuff they do. He has a PCS system which is basically something that continuously gives him pain medicine and then also has a button that if he hurts, we can push it for some more. It is set so that he doesn't get too much.
He was moved to his new room at about 1:15. The rooms here are cool. I can't wait until he wakes up enough to enjoy this place. In his room, there are a few chairs, a bed, a chair that folds to a bed, a tv, a game system, dvd/vcr player, a bathroom with a shower and his 'area'. And that is just his room. They also have a laundry room, a playroom for the kids and a pantry that has lots of different snacks when he can eat again. It's just like a hotel for kids.
He has spent most of the day semi sleeping and crying/moaning that he wants to go home, his head hurts, he wants to go home, he wants chocolate milk, he wants to go home, he wants to sit up, he wants to go home (are you noticing a pattern here??).
He got to talk to his daddy twice today, well he mostly listened to him. Bryan had the most amazing calming effect on Chance. He loves his daddy.
He also got to talk to Quinton, Dilan, Tracy and Gam.
Just a little while ago, he told us that his hand hurt. Dee got the nurse and when she looked at his hand, it was swollen WAY BIG. She took the IV out and we're waiting for the IV therapy people to come and put a new one in. She gave him a warm pack to put on to help with the swelling but he doesn't like it.
I want to say a special thank you to my mother and daughter. My mom has been here to help with Chance and support is in any way that we need. My daughter set up this wonderful web site (or had it set up) and helps me because I am so web incompetent. She is helping with Chance yesterday and today and has been a huge help. Chance was pretty mean to her this morning but he didn't really know any better.
I know that each day is going to get better as we go along. The difference between yesterday and today is amazing.
I can't wait to see what tomorrow brings.
Here are a couple more pictures.
Chance and his teddy bear "Quinton". He went on a trip today, he flew across the room.
Chance and his Annie (that's my mom).
VISITING INFORMATION
Chance is now on the fourth floor. However, we would like all mail to be sent to the Children's House-hopefully we won't be staying in this room for long. If you'd like to visit, please call first.
7AM-11AM are for parents and grandparents to visit.
11PM-7AM only one guardian can be in the room at a time
12PM-8PM are open visitation hours.
8:01 PM
