We made it home!! It feels so good to be here.


When we got home yesterday, there was a nice crowd down at the midget football field waiting for Chance. It was very nice. He seemed so shy at first and then started working his way around to everyone. He even went out on the field with a group of the boys and played some football.


Today has been a bit hectic. We went school shopping and till we got home, we were just tired. Chance's mouth hasn't stopped since he woke up this morning. It is nice that he is back to his old self but we think that Dr. Jallo added a couple of amps to his talking ability and maybe a giggle box with a snort machine. We want to ask him about that when we go back next month for his check-up.


Chance starts school on Tuesday and I get to go with him. It will be good to see him meeting up with all of his friends from school. He missed everyone so much. Wednesday afternoon, we have appointments set up with a rehab in Carlisle. He will have to go for outpatient PT, OT and speech for a couple of months. He still needs to get a little bit stronger, but he is almost back to where he was with abilities from before the surgery. He is still a happy-go-lucky little kid. The only thing that he is afraid of, is that his friends are going to be scared of his scar. Somehow, we'll work through that just like everything else that we have gotten through.


Even with the heartwrenching week and a half after surgery, seeing the way Chance is now, how happy he is, we would choose to do this surgery again. Monday morning will be 4 weeks since Chance has had a seizure and he is glad they are gone.


Another thing that we realized today - we picked up Chance's new prescriptions. He is on the same meds and will stay on them for at least two years or maybe for life, we don't know yet. But, we noticed that his dosage was different. He used to take 7.5 ml of Keppra twice a day and 450 mg of Trileptal twice a day. His Keppra dosage has been changed to 1.5 ml twice a day. I called the hospital to check and make sure that was right. I thought for sure that someone had made a mistake and thought the 7 was a 1. They verified for me that nope, it is supposed to be 1.5 now, not 7.5. The whole time he was in the hospital, they have been giving him 1.5 and still, no seizures. I take that as another very good sign.


I am going to eventually figure out why I can't post pictures from my computer and you all will be able to see Chance in his water battle, trying out the split treadmill and his welcome home pictures. Quinton has a football game tomorrow and Chance just can't wait to go. It will be the first one for him to see this year. He said that he is going to cheer for our team. I don't know though. Historically, Chance has always cheered for whatever team Quinton's team was playing. We'll see.