Chance's Journey.

Wednesday, August 20, 2008

On Chance's last day at JHH, he got to play a PS2 game with the therapists, Matt and Francesca. Here is a video and picture of them. I didn't know that PS2 made interactive games. It was funny to see, if you didn't know that he was interacting with the tv, it looked like he was swatting at flies.

(For some reason

, when I put a video out here, it shows up twice. I don't know why. Sorry about that)

Hanging out in his new room with all the necessary comforts(for him) - Steeler's jersey, Steeler's pajama pants, Steeler's blanket and a few animals. Man, what I wouldn't give to just hang out like that!!! Although, I do believe that he deserves it more.

This is the PT Heather. She is fitting him for a new temporary orthotic on his right leg.

They have us taking Chance everywhere we go in the wheelchair so that he doesn't get tired out before they get him to do some actual work. We're also hoping that it will cut down on the incidents of his headaches. When he has a headache, he can't stand to have any kind of lights on. Right now, his pupils are really dilated. We don't know if that will change or not, but I sure hope so. This doesn't help with the headaches.

Chance had a hearing test today. Good news......his hearing is within normal range for high, medium and low frequencies. Yeah....the surgery didn't affect his hearing.

He told us that he was going to work really really hard so that we could all go home soon. I'm holding him to it and pushing him when I can.

He gets to go on a field trip on Saturday. They are going to go to the Science Museum and his Pappy Joe is going to go along. Deanna goes off to college this weekend and I will be going home on Friday so that I can take her out on Saturday morning. Four hours out and four hours back. Yuck! But that's ok. It's the beginning of a new chapter for her too.

Chance had speech therapy today and the therapist asked him if he knew where he was. He told her, yeah, the hospital. She asked him if he knew why he was in the hospital, and he told her, yeah, they cut my head. She asked him if he knew why they cut his head, and he told her, Yeah, seizures suck. Plainly said. I agree.

A few of my coworkers came down to visit. With them, they brought lots of goodies for Chance. Thank you everyone, he loved everything that he got. The activity stuff will help to fill some of the hours that we don't know what else to do. From the looks of things, Chance has very busy days through the week with lots of hard work. Let's hope he can keep up and get stronger quick.

Thinking of everyone at home and missing you all. Hope to see you soon....Oh yeah, I will see some of you. As long as Chance is doing good, I'll be at Quinton's football game on Sunday. See you then.

10:46 PM


Tagboard Favorite Links Pray for Jessie Hollis's Big Adventure The Hemispherectomy Foundation Credit to Layout Archives 6/29/08 - 7/6/08 7/27/08 - 8/3/08 8/3/08 - 8/10/08 8/10/08 - 8/17/08 8/17/08 - 8/24/08 8/24/08 - 8/31/08 9/14/08 - 9/21/08 9/28/08 - 10/5/08 11/9/08 - 11/16/08 11/16/08 - 11/23/08	Wednesday, August 20, 2008 On Chance's last day at JHH, he got to play a PS2 game with the therapists, Matt and Francesca. Here is a video and picture of them. I didn't know that PS2 made interactive games. It was funny to see, if you didn't know that he was interacting with the tv, it looked like he was swatting at flies. (For some reason, when I put a video out here, it shows up twice. I don't know why. Sorry about that) Hanging out in his new room with all the necessary comforts(for him) - Steeler's jersey, Steeler's pajama pants, Steeler's blanket and a few animals. Man, what I wouldn't give to just hang out like that!!! Although, I do believe that he deserves it more. This is the PT Heather. She is fitting him for a new temporary orthotic on his right leg. They have us taking Chance everywhere we go in the wheelchair so that he doesn't get tired out before they get him to do some actual work. We're also hoping that it will cut down on the incidents of his headaches. When he has a headache, he can't stand to have any kind of lights on. Right now, his pupils are really dilated. We don't know if that will change or not, but I sure hope so. This doesn't help with the headaches. Chance had a hearing test today. Good news......his hearing is within normal range for high, medium and low frequencies. Yeah....the surgery didn't affect his hearing. He told us that he was going to work really really hard so that we could all go home soon. I'm holding him to it and pushing him when I can. He gets to go on a field trip on Saturday. They are going to go to the Science Museum and his Pappy Joe is going to go along. Deanna goes off to college this weekend and I will be going home on Friday so that I can take her out on Saturday morning. Four hours out and four hours back. Yuck! But that's ok. It's the beginning of a new chapter for her too. Chance had speech therapy today and the therapist asked him if he knew where he was. He told her, yeah, the hospital. She asked him if he knew why he was in the hospital, and he told her, yeah, they cut my head. She asked him if he knew why they cut his head, and he told her, Yeah, seizures suck. Plainly said. I agree. A few of my coworkers came down to visit. With them, they brought lots of goodies for Chance. Thank you everyone, he loved everything that he got. The activity stuff will help to fill some of the hours that we don't know what else to do. From the looks of things, Chance has very busy days through the week with lots of hard work. Let's hope he can keep up and get stronger quick. Thinking of everyone at home and missing you all. Hope to see you soon....Oh yeah, I will see some of you. As long as Chance is doing good, I'll be at Quinton's football game on Sunday. See you then. 10:46 PM	About Chance Chance is a 9 year old boy who was born with a neuromigrational birth defect - the left side of his brain is not fully formed correctly. He is the happiest go lucky little guy you would ever meet. He is getting ready to enter 4th grade. He loves to talk, have fun and anything to do with sports-playing or watching. Contact Information Address: Chance Dorman, 583 Wolf Street, Newport, PA 17074 E-mail: tdorman@embarqmail.com