Last night was a very long night. Chance would wake up saying that his head hurt and that he wanted to go home. Then he would sleep for 30-45 minutes and it would start all over again. I felt so bad for him, but there is nothing that I can do but be there to comfort him.

Dee and Mom came over at 8:00 and I went back to the Children's House to sleep for a few hours and grab a shower. Heavenly!!!

OT and PT came in today and did some stretches with him.

The afternoon was peaceful. The long night and the PT/OT must've really wore him out.

Chance's bed got moved to the 60 degree mark. He drank some apple juice and then he threw up. I guess the movement, the apple juice and the food in the feeding tube were just a little bit too much. We cleaned him up and turned the tube off for a little bit. The tube is back on but flowing slower than before. We have water for him to drink tonight if he gets thirsty.

Tomorrow Chance is supposed to get out of bed to walk a little bit. That is something that he really wants to do, but he's gotta get off of the drugs too. He figured out how the pain button works. When he wakes up in pain, he says, "Where's the button?" Isn't the funny. The boy is amazing.

Talk to ya later!!!!

9:25 PM